Invisible Caregivers: Older Adults Raising Children in the Wake of HIV/AIDS

Edited by Daphne Joslin

eISBN: 9780231504584

2002 (288 pages )

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Download Complete Book Download
(pages 1-334)
Complete Book Download (pages 1-334)

Download Table of Contents
(pages 7-8)
Table of Contents (pages 7-8)

Download Preface
(pages 9-14)
Preface (pages 9-14)

Download Acknowledgments
(pages 15-16)
Acknowledgments (pages 15-16)

Download List of Contributors
(pages 17-24)
List of Contributors (pages 17-24)

Download 1. Introduction
(pages 25-50)
1. Introduction (pages 25-50)

Download 2. Caregiving Profiles
(pages 51-65)
2. Caregiving Profiles (pages 51-65)

Download 3. Stigma, Isolation, and Support for HIV-Affected Elder Parental Surrogates
(pages 66-87)
3. Stigma, Isolation, and Support for HIV-Affected Elder Parental Surrogates (pages 66-87)

Download 4. Death and Bereavement Issues
(pages 88-113)
4. Death and Bereavement Issues (pages 88-113)

Download 5. Physical Health and Emotional Well-Being
(pages 114-136)
5. Physical Health and Emotional Well-Being (pages 114-136)

Download 6. Stress and Social Support in Older Caregivers of Children with HIV/AIDS: An Intervention Model
(pages 137-153)
6. Stress and Social Support in Older Caregivers of Children with HIV/AIDS: An Intervention Model (pages 137-153)

Download 7. Caring for the HIV-Infected Child
(pages 154-174)
7. Caring for the HIV-Infected Child (pages 154-174)

Download 8. Their Second Chance: Grandparents Caring for Their Grandchildren
(pages 175-193)
8. Their Second Chance: Grandparents Caring for Their Grandchildren (pages 175-193)

Download 9. Custody and Permanency Planning
(pages 194-210)
9. Custody and Permanency Planning (pages 194-210)

Download 10. Case Management Challenges and Strategies
(pages 211-228)
10. Case Management Challenges and Strategies (pages 211-228)

Download 11. Caregivers and the Educational System
(pages 229-251)
11. Caregivers and the Educational System (pages 229-251)

Download 12. Immigrant and Migrant Families
(pages 252-271)
12. Immigrant and Migrant Families (pages 252-271)

Download 13. Policy Implications for HIV-Affected Older Relative Caregivers
(pages 272-301)
13. Policy Implications for HIV-Affected Older Relative Caregivers (pages 272-301)

Download 14. Global Implications
(pages 302-320)
14. Global Implications (pages 302-320)

Download 15. Conclusion
(pages 321-330)
15. Conclusion (pages 321-330)

Download Index
(pages 331-334)
Index (pages 331-334)

Invisible Caregivers: Older Adults Raising Children in the Wake of HIV/AIDS

An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families.

Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.

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